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Redefining the Role of Government as it Affects the Lives of People with Disabilities
June 27, 2011

June 27, 2011                                                                       Calendar of Events  

Disability Policy Consortium  Weekly Update

 

Dear william,

 

One important message today:  ask your legislators to STOP THE TORTURE in Massachusetts!  See the Advocates Corner below to get the important phone numbers and Please Make the Call Now!

 

File this under lessons learned.  Heading off to meeting Mary Lou Friday afternoon, I was in the Park Street Subway stop with a Netbook and my cell phone.  A colleague called and I became engrossed in our conversation.  The Netbook on the seat next to me disappeared.  My fault for being stupid. It now serves as a warning to all of us not to get too comfortable.

 

Elsewhere, find the Calendar note on the Managed Care for Dual Eligibles tomorrow at the Transportation Building and join us for this continuing discussion that could affect the lives of up to 100,000 people.

 

Bill Allan

Disability Policy Consortium

wfallan@dpcma.org| 617-542-3822

 

 Editorial:   Area of Refuge 

Hotel Area of Refuge
Hotel Area of Refuge

 

 

I had another reminder Friday night of how far beind we are in overall emergency preparedness.  I spent the night in a Marriott hotel on Long Island and noticed this sign in the lobby.

 

I thought this was a real good sign of progress...until I returned to the floor where my room was.  There weren't any signs indicating where Stairwell 1 was located.  There were 5 or 6 EXIT signs in both directions and down a third hallway. What direction would someone go in if the hallways were filled with smoke and panicked people?

 

Next, I asked the Desk Clerk "If I were in a wheelchair, would you tell me which direction Stairwell 1 was from my room"? 

 

A blank stare was all I received in return.

 

It will take more than signs!

Bill Allan Signature

 

Advocates Corner:  Stop the Torture!

     

The FY12 Budget is tied up in the Conference Committee where the House and Senate members are working to reconcile their differences.  One of the issue is not money but the continued use of electronic devices that are used to shock people with disabilities as part of a so-called treatment plan.  Attempts to ban the use of Aversive Treatments or regulate their use have died in the legislature for over 20 years.  This year, following the indictment of the founder and director of the Judge Rotenberg Center in Canton, Sen Brian Joyce was able to get approval for language in the Senate Budget that would restrict the use of such behaviorial treatments.

 

The House is resisting agreeing with this language.  In years past, one House member has used his influence with the Speaker to pigeon-hole the reform efforts.  This should not be allowed to continue.

 

Please call your Representative in the House (617 722-2000, 800 304-6763) AND the Speaker's Office (617 722-2500) to tell them it is TIME TO GET SERIOUS ABOUT TORTURE IN MASSACHUSETTS!  Support the language in the Senate version of the budget on use of aversive treatments.

 

Please do this NOW!

 
Advocates Corner: Help Save Money

from Joe Lyons, Quincy MA


Petition to End Corporate Welfare and Expand Medicare

 
Are you concerned about rising healthcare costs?
Fight the Ryan Republican plan to privatize Medicare passed by the Republican-controlled House of Representatives.

Instead of making seniors pay over $6,000 more per year for vouchers to subsidize private health insurance, we can expand Medicare by eliminating the Republican price-fixing scheme that forbids the government from negotiating drug prices with the drug companies.

Nobel Prize-winning economist Joseph Stiglitz of Columbia University projects that eliminating the one sentence in the Bush Medicare Part D prescription drug plan that allows the drug companies to set their own prices will save the taxpayers-and Medicare-one trillion dollars over the next ten years!

Sign the petition below to tell Congress to close the loophole and allow the government to negotiate drug prices.

The 46th anniversary of Medicare is July 30. This petition will be delivered to Congress in conjunction with the July 25 national call-in day sponsored by our allies at Healthcare-NOW!
Please spread the word-ask your friends and family members to sign the petition!

We are asking you to sign the Petition to End Corporate Welfare and Expand Medicare. By closing this no-negotiation loophole, taxpayers-and Medicare-will save one trillion dollars in ten years. Please sign the petition and ask your friends and family members to sign it, too.
You'll find news items, resource materials, and actions you can take on our Campaign to End Corporate Rule Web page.
Yours in the movement,
Tim Carpenter
Progressive Democrats of America National Director
pdamerica.org
           
 

Quote of Note:  Rep. Steve Walsh

 

"If this time next year the best job in Boston is the Director of an ACO, we've failed".  

 

House Chair of the Joint Health Care Finance Committee Rep. Steve Walsh speaking before Mass Home Care's Annual Meeting on Monday, June 20, 2011. 


                           
 

Award:   In Our Own Voice      


 

NAMI MASS RECEIVES AWARD FOR BEING 1st in the Nation to offer

 In Our Own Voice video with American Sign Language-interpretation

 

WOBURN, Mass - The National Alliance on Mental Illness of Massachusetts (NAMI Mass) announced today that the organization will be recognized at the upcoming NAMI National Convention in Chicago, July 6 - 9, with a Distinguished Service Award for their In Our Own Voice (IOOV) videotape with added American Sign Language interpretation.  NAMI Mass is the first in the nation to offer IOOV with ASL.  In 2010, the IOOV program was offered in 42 states.  Locally, NAMI Mass made 121 presentations reaching out to an audience of 2,196 last year.

 

 In Our Own Voice:  Living with Mental Illness is an hour long presentation given by two trained people who are in recovery from mental illness.  The talk includes the video, first-person testimony, and discussion with the audience.  The program is designed to enrich the audiences' understanding of how people with serious psychiatric disorders cope with their illnesses while recovering and reclaiming productive lives.  The presentation is accessible to lay audiences, mental health professionals, first responders and schools alike.

 

CONTACT:  Laurie Martinelli

June 23, 2011                                                                          

781-938-4048

                                                                                                lmartinelli@namimass.org
 

On the Calendar:   Meeting on Duals

 

Executive Office of Health and Human Services,

Office of Medicaid (MassHealth)

 

Meeting regarding Integrating Medicare and Medicaid for Dual Eligible Individuals that will be held on Tuesday, June 28, 2011 from 12:00 noon - 2:00 pm in Conference Rooms 2 - 3 at the State Transportation Building located at 10 Park Plaza, Boston, MA, 02116. 

 

 

On the Calendar:   DDS Hearing on Aversives

 

COMMONWEALTH OF MASSACHUSETTS

EXECUTIVE OFFICE OF HEALTH AND HUMAN SERVICES

DEPARTMENT OF DEVELOPMENTAL SERVICES

 

NOTICE OF PUBLIC HEARING

PROPOSED AMENDMENT OF REGULATIONS

 

In accordance with M.G.L. c. 30A, the Department of Developmental Services ("DDS") proposes to amend its regulations under the authority of M.G.L. c. 19B, §§ 1 and 14.  The regulations are proposed for amendment to establish the highest practicable professional standards for use of behavior modification procedures for persons with intellectual disability in public or private facilities for the care and treatment of such persons.  The proposed amendments will prohibit the use of aversive (Level III) behavioral interventions on a prospective basis.  Proposed amendments will allow continued use of Level III interventions for individuals who, as of September 1, 2011, have an existing court-approved behavior plan that includes Level III interventions, and will allow their renewal each year so long as Level III interventions remain a part of their court-approved behavior plan.   

 

The proposed amendments will also make technical corrections and other appropriate edits to the existing regulations where required. 

 

PUBLIC HEARINGS HAVE BEEN SCHEDULED:

 

Wednesday, July 20, 2011, from 10:00 a.m. to 2:00 p.m. at:   Worcester Public Main Library

 

 The Saxe Room

 3 Salem Square

Worcester, MA 01608

 

Friday, July 22, 2011, from 10:00 a.m. to 4:00 p.m. at:

                                                                                                 

John W. McCormack Bldg

21st Floor Conference Room

One Ashburton Place

Boston, MA 02108

 

Written comments may be submitted by mail to the Office of the General Counsel, Department of Developmental Services, 500 Harrison Avenue, Boston, MA 02118, or by facsimile (617) 624-7573 until 5:00 p.m., August 1, 2011.  Please contact the Department at least 10 days in-advance of the hearing date if you anticipate attending and wish to request a sign language or other interpreter attend.

 

Copies of the proposed regulation amendments are available upon request by telephone at (617) 624-7702, or by written request made to the Office of the General Counsel.

 

The Department may adopt a revised version of the proposed regulations taking into account relevant comments and any other practical alternatives that come to the Department's attention.

 

By Order of the Department of Developmental Services

ELIN M. HOWE, COMMISSIONER                                               June 23, 2011

    

 

On the Calendar:     Watertown Arts    

From the Watertown Commission on Disabilities.  

 

AN   INVITATION

 

You are cordially invited to submit your artwork at an Exhibition, Able Arts, sponsored by the Watertown Commission on Disability

for artists with disabilities. 

The Exhibition will be held at the Watertown Free Public Library, 123 Main Street, Watertown, MA  02472 in October and November 2011.

 

Artists who are interested in exhibiting should submit the following to the Watertown Commission on Disability, 149 Main Street, Watertown, MA  02472, Attn:

Gayle Shattuck,  Personnel Director and ADA Coordinator:

1.     Name and contact information, including telephone, address, email and website;

2.     Samples of work;

3.     Biography/resume, including any prizes you may have won.

SUBMISSION DEADLINE IS SEPTEMBER 1, 2011

Members of the Watertown Commission on Disability will jury and make the final decisions about the works chosen for presentation.

 

Display:  All artworks, except for crafts, must be framed with a wire across the back to accommodate the hanging system for artwork.  Crafts will be displayed in glass cases adjacent to the gallery.

 

Publicity : The Watertown Commission on Disability will write a press release and print flyers.  We will dispense these flyers, but  the artists will be responsible for sending out invitations to professional contacts, friends and family.

 

Reception:  There will be a reception to honor the participants at the beginning of October (date to be determined).  The Watertown Commission on Disability will also sponsor and provide refreshments at this reception.

 

Sales : The Watertown Commission on Disability and the Watertown Free Public Library will take no commission for works sold.  Price lists will be available to library patrons in the exhibit area and artists are responsible for determining a fair market price for their work.

 

Insurance : The Watertown Commission on Disability and the Watertown Free Public Library hold no insurance for the artwork on exhibit and are not responsible for loss or damage of the artists' work.

 

 
News from the Net: Medicare Saves Money

from the New York Times via Bob DiSimone

 

By PAUL KRUGMAN

 

Published: June 12, 2011

 

Every once in a while a politician comes up with an idea that's so bad, so

wrongheaded, that you're almost grateful. For really bad ideas can help

illustrate the extent to which policy discourse has gone off the rails.

 

And so it was with Senator Joseph Lieberman's proposal, released last week,

to raise the age for Medicare eligibility from 65 to 67.

 

Like Republicans who want to end Medicare as we know it and replace it with

(grossly inadequate) insurance vouchers, Mr. Lieberman describes his

proposal as a way to save Medicare. It wouldn't actually do that. But more

to the point, our goal shouldn't be to "save Medicare," whatever that

means. It should be to ensure that Americans get the health care they need,

at a cost the nation can afford.

 

And here's what you need to know: Medicare actually saves money - a lot of

money - compared with relying on private insurance companies. And this in

turn means that pushing people out of Medicare, in addition to depriving

many Americans of needed care, would almost surely end up increasing total

health care costs.

 

The idea of Medicare as a money-saving program may seem hard to grasp.

After all, hasn't Medicare spending risen dramatically over time? Yes, it

has: adjusting for overall inflation, Medicare spending per beneficiary

rose more than 400 percent from 1969 to 2009.

 

But inflation-adjusted premiums on private health insurance rose more than

700 percent over the same period. So while it's true that Medicare has done

an inadequate job of controlling costs, the private sector has done much

worse. And if we deny Medicare to 65- and 66-year-olds, we'll be forcing

them to get private insurance - if they can - that will cost much more than

it would have cost to provide the same coverage through Medicare.

 

By the way, we have direct evidence about the higher costs of private

insurance via the Medicare Advantage program, which allows Medicare

beneficiaries to get their coverage through the private sector. This was

supposed to save money; in fact, the program costs taxpayers substantially

more per beneficiary than traditional Medicare.

 

And then there's the international evidence. The United States has the most

privatized health care system in the advanced world; it also has, by far,

the most expensive care, without gaining any clear advantage in quality for

all that spending. Health is one area in which the public sector

consistently does a better job than the private sector at controlling

costs.

 

Indeed, as the economist (and former Reagan adviser) Bruce Bartlett points

out, high U.S. private spending on health care, compared with spending in

other advanced countries, just about wipes out any benefit we might receive

from our relatively low tax burden. So where's the gain from pushing

seniors out of an admittedly expensive system, Medicare, into even more

expensive private health insurance?

 

Wait, it gets worse. Not every 65- or 66-year-old denied Medicare would be

able to get private coverage - in fact, many would find themselves

uninsured. So what would these seniors do?

 

Well, as the health economists Austin Frakt and Aaron Carroll document,

right now Americans in their early 60s without health insurance routinely

delay needed care, only to become very expensive Medicare recipients once

they reach 65. This pattern would be even stronger and more destructive if

Medicare eligibility were delayed. As a result, Mr. Frakt and Mr. Carroll

suggest, Medicare spending might actually go up, not down, under Mr.

Lieberman's proposal.

 

O.K., the obvious question: If Medicare is so much better than private

insurance, why didn't the Affordable Care Act simply extend Medicare to

cover everyone? The answer, of course, was interest-group politics:

realistically, given the insurance industry's power, Medicare for all

wasn't going to pass, so advocates of universal coverage, myself included,

were willing to settle for half a loaf. But the fact that it seemed

politically necessary to accept a second-best solution for younger

Americans is no reason to start dismantling the superior system we already

have for those 65 and over.

 

Now, none of what I have said should be taken as a reason to be complacent

about rising health care costs. Both Medicare and private insurance will be

unsustainable unless there are major cost-control efforts - the kinds of

efforts that are actually in the Affordable Care Act, and which Republicans

demagogued with cries of "death panels."

 

The point, however, is that privatizing health insurance for seniors, which

is what Mr. Lieberman is in effect proposing - and which is the essence of

the G.O.P. plan - hurts rather than helps the cause of cost control. If we

really want to hold down costs, we should be seeking to offer Medicare-type

programs to as many Americans as possible.

 
News from the Net: FCC Notice on Emergencies        

On June 17, 2011, the Commission issued a Public Notice reminding video programming distributors (VPDs) of their obligation to make emergency information accessible.  The FCC has rules in place to ensure that the critical details of emergency information shown on television are accessible to viewers with hearing or vision disabilities. There are no exemptions to these rules. VPDs - including broadcasters, cable operators, satellite television services - are responsible for following these rules.  Emergency information that is heard must be made accessible using closed captioning or other methods of visual presentation, including open captioning, "crawls," or "scrolls" that appear on the screen.  Emergency information that is seen must also be made accessible: For regularly scheduled newscasts the newscaster must make sure they speak whatever emergency information is being provided visually.  If emergency information interrupts programming (for example, if there is a crawl or scroll going across the screen that contains emergency information), there must be an aural tone to alert persons with vision disabilities of emergency information so they can tune to another source, such as a radio, for more information.

 

Link to Public Notice:  

http://transition.fcc.gov/Daily_Releases/Daily_Business/2011/db0617/DA-11-1070A1.doc

http://transition.fcc.gov/Daily_Releases/Daily_Business/2011/db0617/DA-11-1070A1.pdf

http://transition.fcc.gov/Daily_Releases/Daily_Business/2011/db0617/DA-11-1070A1.txt  

 

 
News from the Net:  BCIL Meeting Report 

 

Great Advocates Summit:  An Agenda for Action!

 

Over fifty advocates attended BCIL's annual Advocates Summit on June 3, 2011, and the productive discussions produced a major agenda for action for the coming months. Key issues and action items include the following:

 

 

Advocacy on MBTA services

Concerns about service on The Ride and potential alterations were paramount. While some indicated that they "love" the service-it's an essential means to get around- the common problem of late arrivals and too-long trips were voiced, as was concern about potential service curtailments and new eligibility processes (which could have deep impact on people with intellectual and mental health disabilities). Related issues voiced include the need to expand and improve accessible taxi service in Boston, and have vouchered alternatives; improve bus protocol including assurance that buses pull up to the curb; the lack of assistance in subway stations; inaccessible sidewalks around stations; and the need for reinstating travel training. Immediate next steps:

 

Ø  Attend  the June 20, 1:00 public meeting on the MBTA lawsuit settlement hosted by the Independent Monitor, Judge Patrick King, at the T, 2nd floor; you will have the chance to speak on both the good and your concerns around MBTA access.

Ø  Attend a BCIL meeting with General Manager Rich Davey on Ride issues being set for July; contact Karen Schneiderman at BCIL for details on a chance to speak about your issues.

 

 

ADA compliance and public access

The following access issues were raised: the failure of the state Department of Transportation to complete an ADA self-evaluation; the disproportionate problem of inaccessible sidewalks in minority neighborhoods; the major access problem raised by brick sidewalks; the need to work with neighborhood businesses to become accessible, including with the city's Main Streets initiative; the need to file complaints with the state Architectural Access Board; and access to cultural sites.  Immediate next steps:

 

Ø  Attend a City Hall meeting on policies for reconstructing sidewalks: Wednesday, June 22, 6:00-7:30, Piemonte Room, City Hall, 5th floor.  Note that a group letter was  sent to Mayor Menino strongly advocating for "elimination to the highest degree possible, the use of bricks for sidewalks" because they "essentially make many sidewalks - and neighborhoods- impassable to people with disabilities" and "are, in essence, a segregating mechanism."

 

Ø  Neighborhood survey: BCIL and Sergio Goncalves will organize an assessment of sidewalk access in parts of Dorchester; contact Karen Schneiderman for more information.

 

John Kelly and others are working to try to get the Emerald Necklace, controlled by the CDR, to make pathways that are currently only made of gravel redesigned to make the environment accessible to people who use wheelchairs and others with mobility issues. He is looking to partner with organizations such as BCIL and other groups as well. Call him at 617-536-5140 if you would like to get involved.

Healthcare access

Access to hospital and physician services was a hot topic, and fits into BCIL's work to make Massachusetts General, Brigham and Women's, and Boston Medical Center accessible. Many barriers exist in healthcare, including unreachable exam tables and scales, and diagnostic equipment that cannot accommodate people who use wheelchairs and others. There is disparate care that affects people's overall wellbeing. People also expressed their desire for clinics and other medical facilities as well as hospitals to provide sensitivity training on the subject of disability with an emphasis on people with anxiety and depression as a primary or secondary disability. There's also huge concern-and it's no overstatement-about cuts to Medicaid and Medicare at the federal level that will reduce care and services in the future. Immediate next steps:

 

Ø  BCIL will hold a meeting on hospital access issues in July-contact Bill Henning or Karen Schneiderman if you wish to attend or have a pressing concern. Date to be determined.

Ø  Contact your Congressperson to convey the importance of Medicaid; the group letters we sent to Senators Scott Brown and John Kerry aren't enough. The debate to reduce the deficit and cut Medicaid may be front and center in Washington in the coming days; balancing the budget on the backs of people with disabilities is not acceptable. Call or email our Congressional delegation now! Find your representative: www.house.gov/representatives; toll-free number to Congress: 866-922-4970.

Ø  Keep federal and state officials reminded of the concept of least restrictive environments so that no one has to end up in a nursing home unless it is the only way to survive.

Ø  For those who are looking for PCAs and have had no success, you can go online to www.rewardingwork.org for listings of people willing to do a variety of personal care and homemaking services.

 

Contact Information:

Karen Schneiderman  617-338-6665  xt.204   kschneiderman@bostoncil.org

Bill Henning   617-338-6665  xt.213  

bhenning@bostoncil.org      

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P.O. Box 77 Boston, MA 02133