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Redefining the Role of Government as it Affects the Lives of People with Disabilities
July 11, 2011

Disability
Policy Consortium

July 11, 2011                                    Calendar of Events  
Disability Policy Consortium  Weekly Update

 

Dear Bill,

 

It fun when there's a real theme to a DPC Update.   

 

Today's issue focuses on the use of aversive behavioral

treatments.  There is one place in the county that is allowed to "treat" young people and adults with electric shocks.  In 2010 the United Nations declared this to be torture.  How proud can we be that this happens Only in Massachusetts.

 

Department of Developmental Services Commissioner Elin Howe has approved new regulations on behavioral treatments.  DDS is sponsoring public hearing on July 20 & 22.  The DPC is asking you to attend and show your support for ending this travesty.

 

The next week has a Legislative hearing on a Bill (HB77) to outright ban "punishment" in the guise of therapy.  This is another opportunity to show up and support folk who can't speak for themselves.

 

An important change in pace is the hearing on July 19 on the DPC's vendor employment bill.  Read that section and join us if you think you have been discriminated against in getting a job.

 

As an endnote, there wasn't any response from EOHHS Secretary JudyAnn Bigby to last week's editorial. 

 

Bill Allan

Disability Policy Consortium

wfallan@dpcma.org| 617-542-3822

 

Editorial:  Shame on Massachusetts

                     

Massachusetts is the only state in the United States of America that allows people with disabilities and young people with behavior problems to be in a state sanctioned treatment program that allows these people to be subjected to electronic shock so-called therapy.

There have been attempts for over 25 years to get the General Court (the legislature) to pass legislation banning the practice.  Five years ago advocates and legislators regrouped and proposed legislation that would set stricter conditions upon which the shocks could be administered.  For example, a certified  behavior analyst would have to be present, rather than the current system which the GED device is often in the hands of untrained people with high school degrees.

The Department of Developmental Services has announced public hearings on new regulations on June 20 & June 22.  The regulations would "grandfather" current enrollees under Court orders but restrict new students from getting the shock treatments.

This is an issue that the DPC has taken an active role in and a strong stand against the use of aversives.  Many of our brothers and sister with autism find themselves in this environment subject to a treatment program that could not be used on a dog!

Please join us and others opposed to electronic shock therapy at the hearings in Worcester (July 20, WPL) or Boston (July 22, 1 Ashburton Place, specifics below).  We need a strong show of support for DDS Commissioner Elin Howe for the courageous action she has undertaken.

See you there!.
Bill Allan Signature
 

FY12 Budget: MassHealth

 

from the Mass Budget & Policy Center

MassHealth (Medicaid) & Health Reform

Funding for MassHealth (Medicaid) is $10.54 billion, somewhat higher than what the House proposed and somewhat lower than the Senate appropriation. More notably, while this spending level represents a 96.4 million increase over FY 2011 current spending, it is close to $800 million less than what it would cost to maintain the MassHealth program in its current form, given expected enrollment and utilization growth, and reflects the administration and legislature's belief that significant cost-savings can be achieved through better care management and other initiatives.

 

Likewise, while the Senate had proposed a transfer of $871.5 million into the Commonwealth Care Trust Fund ($751.5 million from the General Fund and $120.0 million from the cigarette excise tax) and the House proposed a total of $847.0, the Conference budget includes a transfer of $848.0 ($728.0 million from the General Fund plus $120.0 million from the cigarette tax), just $1.0 million above the House proposal. The lower House amount was related to the fact that the House included only a half year of funding for the Commonwealth Care Bridge program that provides health coverage for immigrants who are not eligible for Commonwealth Care, while the Senate provided a full year of funding. However, the Conference budget also includes an outside section that authorizes an increase in FY 2011 funding for the for the Trust fund and allows the additional dollars to be spent in FY 2012; this appears to bring total available funding for closer to the Senate proposed level, and thus to fund the Bridge program for a full year. The rest of the difference is accounted for by the fact that the Conference budget allocates just $3.5 million for Connector payments to small businesses that offer wellness incentive programs for their employees, $1.0 million more than the House proposed, but $6.5 million less than the Senate.

 

Advocates Corner: DDS Level III  

          Changes Proposed 

 

In accordance with M.G.L. c. 30A, the Department of Developmental Services ("DDS")

proposes to amend its regulations under the authority of M.G.L. c. 19B, §§ 1 and 14. The regulations are proposed for amendment to establish the highest practicable professional standards for use of behavior modification procedures for persons with intellectual disability in public or private facilities for the care and treatment of such persons. The proposed amendments will prohibit the use of aversive (Level III) behavioral interventions on a prospective basis. Proposed amendments will allow continued use of Level III interventions for individuals who, as of September 1, 2011, have an existing court-approved behavior plan

that includes Level III interventions, and will allow their renewal each year so long as Level III interventions remain a part of their court-approved behavior plan.

 

The proposed amendments will also make technical corrections and other appropriate edits to the existing regulations where required.

 

PUBLIC HEARINGS HAVE BEEN SCHEDULED:

 

Wednesday, July 20, 2011, from 10:00 a.m. to 2:00 p.m. at: Worcester Public Main Library

The Saxe Room

3 Salem Square

Worcester, MA 01608

 

Friday, July 22, 2011, from 10:00 a.m. to 4:00 p.m. at: John W. McCormack Bldg

21st Floor Conference Room

One Ashburton Place

Boston, MA 02108

 

Written comments may be submitted by mail to the Office of the General Counsel,

Department of Developmental Services, 500 Harrison Avenue, Boston, MA 02118, or by

facsimile (617) 624-7573 until 5:00 p.m., August 1, 2011.  

Please contact the Department at

least 10 days in-advance of the hearing date if you anticipate attending and wish to request a

sign language or other interpreter attend.

 

Copies of the proposed regulation amendments are available upon request by telephone at

(617) 624-7702, or by written request made to the Office of the General Counsel.

 

he Department may adopt a revised version of the proposed regulations taking into account relevant comments and any other practical alternatives that come to the Department's attention.

 

By Order of the Department of Developmental Services

ELIN M. HOWE, COMMISSIONER June 23, 2011

                 

 

Advocates Corner: HB77

 

Rep. Tom Sannicandro (D-Ashland) sponsored legislation in the current session that would outright ban the use of aversive therapies in Massachusetts.  This legislation says  

 

No program funded, operated, licensed, or approved by any agency or subdivision of the Commonwealth shall administer to any person with a physical or mental disability any procedure which causes obvious signs of physical pain, including, but not limited to, hitting, pinching, and electric shock for the purposes of changing the behavior of the person. No such program may employ any form of physical contact or punishment that is otherwise prohibited by law, or would be prohibited if used on a non-disabled person. No such program may employ any procedure which denies a person with a physical or mental disability adequate sleep, food, shelter, bedding or bathroom facilities.

 

The Joint Committee on Children, Families and Persons with Disabilities has scheduled a public hearing on July 26, 2011, 10:30 AM in Room B1. Please join us to testify or simply show support!

 

 

Advocates Corner:  DOJ Can Act!

Justice Department Signs Agreement with Van Buren County, Arkansas, to Ensure Civic Access for People with Disabilities

WASHINGTON - The Justice Department today announced an agreement with Van Buren County, Ark., to improve access to all aspects of civic life for persons with disabilities. The agreement was reached under Project Civic Access (PCA), the department's wide-ranging initiative to ensure that cities, towns and counties throughout the country comply with the Americans with Disabilities Act (ADA).

 

"Individuals with disabilities must have access to public facilities, programs, services and activities in order to participate equally in civic life," said Thomas E. Perez, Assistant Attorney General for the Civil Rights Division.  "I commend Van Buren County officials for making this commitment to its residents with disabilities by agreeing to come into voluntary compliance with the ADA."

 

PCA was initiated to ensure that persons with disabilities have an equal opportunity to participate in civic life, a fundamental part of American society.  As part of the PCA initiative, Justice Department investigators, attorneys and architects survey state and local government facilities, services and programs in communities across the country to identify the modifications needed for compliance with ADA requirements. The agreements are tailored to address the steps each community must take to improve access.  This agreement is the 190th under the PCA initiative.  According to census data, more than 28 percent of Van Buren County residents have a disability and will benefit from this agreement.  

Under the agreement announced today, Van Buren County, Ark., will take several important steps to improve access for individuals with disabilities, such as:  

  • Making physical modifications to facilities surveyed by the department so that parking, routes into buildings, entrances, service areas and counters, restrooms, public telephones and drinking fountains are accessible to people with disabilities;
  • Surveying other facilities and programs and making modifications wherever necessary to achieve full compliance with ADA requirements;
  • Posting, publishing and distributing a notice to inform members of the public of the provisions of Title II of the ADA and their applicability to the county's programs, services and activities;
  • Training county staff in using the Arkansas Relay Service as a key means of communicating with individuals who are deaf, are hard-of-hearing or have speech disabilities;
  • Undertaking the required planning and modifications to ensure equal, integrated access to emergency management for individuals with disabilities, including emergency preparedness, notification, evacuation, sheltering, response, clean up and recovery;
  • Ensuring that the county's official website and other web-based services are accessible to people with disabilities;
  • Developing a method for providing information for interested persons with disabilities concerning the existence and location of the county's accessible services, activities and programs;
  • Installing signs at any inaccessible entrance to a facility directing individuals with disabilities to an accessible entrance or to information about accessing programs and services at other accessible facilities; and
  • Implementing a comprehensive plan to improve the accessibility of sidewalks, transportation stops and pedestrian crossings by installing accessible curb ramps throughout Van Buren County.

 

Today's agreement was reached under Title II of the ADA, which prohibits discrimination against individuals with disabilities by state and local governments. The agreement will remain in effect for three years from June 28, 2011, or until all actions required by the agreement have been completed, whichever is later.  The department will actively monitor compliance with the agreement until all required actions have been completed.

 

Editor's Note:  Must between be something different between Arkansas and Massachusetts! (Emphasis was added).
 
 

On the Calendar: Level III Hearings  

 

Wednesday, July 20, 2011, from 10:00 a.m. to 2:00 p.m. at: Worcester Public Main Library

The Saxe Room

3 Salem Square

Worcester, MA 01608

 

Friday, July 22, 2011, from 10:00 a.m. to 4:00 p.m. at: John W. McCormack Bldg

21st Floor Conference Room

One Ashburton Place

Boston, MA 02108

 

On the Calendar: Ban Shock Treatment - HB77 

 

Thursday, July 28, 2011

Joint Committee on Children Families and  

Persons with Disabilities

10:30 AM Room B1 

Advocates Corner: Get a Job?  

 

Have you tried to get a job with a vendor of the Commonwealth...an agency who contracts with the state to provide services to elders, children, or maybe people with disabilities.  Or, maybe you applied for a job

with the a company with a contract with The Ride?  Or WB Mason?

 

If  you have and feel you were discriminated against because of a disability, the DPC wants you to testify on July 19 at the State House. 

 

Rep Jim O'Day (D-Worcester) sponsored HB982 on behalf of the DPC in an effort to increase employment opportunities for people with disabilities.  Titled An Act to increase the Commonwealth's compliance with federal law meeting requirements of the Americans with Disabilities Act, the legislation would require the Executive Office of Adminstration and Finance to  develop standards to identify and recruit with the intent to hire qualified applicants with disabilities; said standards shall apply to all vendors providing direct services under multi-year contracts or grants funded by agencies within the Executive Offices of the Commonwealth.

 

This legislation would cover every vendor from paper supplies to human service agencies to consulting companies with multi-year contracts.  

 

Please contact Bill Allan if you want assistance testifying.  wfallan@dpcma.org 

 

Calendar: Vendor Employment    


Joint Committee on Children, Families and
Persons with Disabilities
July 19, 10:30 AM
Gardner Auditorium
                           
 
 

On the Calendar: Summer Concerts   

BOSTON, MA - July 6, 2011 - The Board of Trustees and Overseers of the Boston Landmarks Orchestra is proud to announce a new initiative for its 2011 season entitled "Breaking Down Barriers".  Landmarks Orchestra is committed to removing barriers for people with visual, hearing, and mobility disabilities to attendits concerts.  It is partnering with the Multi-Cultural Independent Living Center of Boston on all aspects of the project.

 

"Boston Landmarks Orchestra is serious about making great music accessible to everyone.  They've taken stock of the things that might make getting to the Hatch Shell for a concert difficult for some people and are working to make their concerts welcoming to everyone.  They are ready to help and their concerts are free.  Don't hesitate to accept this open invitation to enjoy Boston's Esplanade and a summer full of great music," said Charles J. Washburn, Executive Director VSA Massachusetts (The State Organization on Arts and Disability).

 

The Orchestra will provide both Braille and large text programs at all of its concerts this summer.  Sign language interpreters will be present for its August 3rd concert in collaboration with the Boston Lyric Opera. This is being made possible with the help of Christopher Robinson, and the team of interpreters will consist of Stacey D'Onofrio and Aimee L.S. Robinson.

 

With the recent upgrade of The Charles/MGH T Station to make it accessible and the work that done by the Massachusetts Department of Conservation and Recreation on the grounds of the Hatch Shell, the opportunity for people with disabilities to enjoy events on the Esplanade has increased.  There is a drop off location on site at the Hatch Shell, and designated handicapped parking spots will be available along Storrow Drive. Thanks to the City of Boston's Commission for People with Disabilities, some additional handicapped parking spots will also be provided along Beacon Street near Arlington Street.

 

The Boston Landmarks Orchestra presents great music for free every Wednesday evening at 7pm starting July 13 through August 31 at the DCR's Hatch Shell on the Esplanade. Privately funded, the Orchestra is committed to bringing people together to experience the thrill of live orchestral music in special settings. 

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