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Redefining the Role of Government as it Affects the Lives of People with Disabilities
September 26, 2011
Disability Policy Consortium

Disability Policy Consortium  

Weekly Update

September 26, 2011  

 
in this issue
:: Dual Eligible Consumer Meeting
:: MH Commitment Bill Hsfring
:: Leadership Institute: Taxes
:: The Ride Assessments
:: DAAHR Discussions
:: Asperger's Syndrome Connections 2011
 
Greetings!

This is for all the Hot Rodder wannabes out there.  If you missed Friday's Expos at the Hynes Convention Center in Boston all the boys (and a few
Hot Wheels
A hot set of wheels a the Expo 
girls) were salivating over this vehicle.  Rumor has it that three DPC members were each considering purchasing one so they could drag race. Is that true JW, JG & MM?
 
Hot Wheels from the Expo
Hot Wheels ramp
It was great seeing friends an touching base with people.  We also met a new legal contact who we hope will begin to work with us.

The Disability Advocates Advancing our Healthcare Rights is pursuing our list of principle with EOHHS.  There is an important meeting on Tuesday at 1 Ashburton for ALL people who are on both MassHealth & Medicare.  (Details below). Please, if this is your health care we are talking about, join us.

If you loved the weather this past weekend, remember who gave you September as another summer month!  And, I think we'll be good through Columbus Day weekend.  Enjoy.

Bill Allan
Disability Policy Consortium 
Editorial: Progressive Mass.

 

I read a personal email late Friday from Avi Green, (who works for Mass Vote), announcing the beginning of Progressive Mass titled "the future of our state begins here." Avi's note went on to ask:


Are you frustrated that progressive state legislation - like universal health care, fair taxation, and the bottle bill - never sees the light of day?

 

Do you despair that your individual efforts, or even the efforts of your local activist group, don't carry enough clout to have a statewide impact?

 

Do you want to be part of a unified, statewide, grassroots movement that can make Massachusetts a model of progressive policy?

....Then come to the first organizational meeting of Progressive Mass!

When: Sunday, October 2nd, 2 to 6 pm
Where: Lasell College, Newton, MA

(near Mass Pike,  Rt. 128, and 8 min. walk from the Green Line)

Progressive Mass. is a new, statewide, diverse organization built from the ground up by organizers and activists like you.   

 
We believe that to create meaningful changes in public policy, progressives in every corner of the state must work together to hold elected officials accountable to progressive values. 

 

 

As I look back over 9 years as Executive Director and lobbyist for the DPC, the most unrewarding part of the job has been trying to move good legislation through the State House. Legislation that costs nothing or very little goes nowhere: identification cards for PWD, changes to AAB enabling statutes, getting PCA services for people getting out of hospitals which would actually save money, etc. etc. etc.

 

Or, 25 years of allowing JRC to "torture" people with disabilities because legislators think it's a "parent's right".  Can I do it to my dog 70 times in  weekend and not get arrested? 

 

Also on Friday, former Speaker Sal DiMasi's lawyer characterized the Speaker's action soliciting a kickback of $65,000 as "the mother's milk of politics." My mother's been dead for 5 years but the civics lessons I learned from her didn't include bribery to get things done.

 

Gambling? Why do you think ¾ of the "NO" votes in the Legislature are now "YES" votes. There's money flowing and it won't show up on Secretary Galvin's lobbyist reports.

 

I'm old enough to remember at least three other attempts at organizing progressives in Massachusetts.  Dead efforts.  Accomplished little.  Organizing liberals is harder than herding cats!

 

Despite changing my party affiliation to "UnEnrolled" last month, this time I'm going to get involved.

 

First, I'm inviting you to join me on October 2 at Lasell College in Newton from 2 - 6 PM.

 

 

 

Second, I'm activating my Twitter account and devoting it to notes on Massachusetts politics such as "Why do we have to sue Mass. on ADA issues when Gov. Patrick ran the the DOJ Civil Rights Div? What am I missing? Are we "chopped liver"?

 

Find me as @wfallan.

 

Third, some of this will carry over on MY Facebook page "Bill Allan".

 

Lastly, this effort will be personal based on my life experiences and my work at the DPC. HOWEVER, it will never represent the Disability Policy Consortium, it's Board or its members. And this will be the only time you hear me on this subject in this publication.

 

Bill Allan Signature
Bill Allan
Disability Policy Consortium

 

P.S. I don't know how my wife, Mary Lou Maloney, ever did this work for 20 years. God bless her!

 

Dual Eligible Consumer Meeting
September 27, 2011
 

Consumer focused meeting on Tuesday, September 27 for the initiative on Integrating Medicare and Medicaid for dual eligible individuals.

 

As a reminder, the meeting logistics are as follows:

 

Tuesday, September 27, 2011

10:00 am - 12:00 noon

One Ashburton Place, 21st Floor, Conference Room 3

Boston, MA

Call-In Number: 508-856-8222, Pass Code: 1401#

 

 
MH Commitment Bill
Article Subheading

Help Stop Outpatient Commitment from Coming to Massachusetts!
 
MH & Substance Abuse Committee Hearing:
Tues. Sept. 27th  1:00 PM
State House, Room A-2

For more info, call MPOWER @ (617) 297-2030
 
 
Menino Leadership Institute
September 27 - 28, 2011

Focus on Taxes

The National Disability Institute's REI Tour, now going into its eighth year along with partners in 100 cities, is providing taxpayers with disabilities a "gateway" to asset building opportunities.   

  

Since 2005, the REI Tour has helped increase the number of taxpayers with disabilities accessing free tax assistance from 6 percent to 14 percent nationwide.

 

Date

Sept. 27 & 28, 2011

Time

Sept. 27:
8:00 a.m. - 5:15 p.m.  
Sept. 28:
8:00 a.m. - 12 noon

Where

Federal Reserve Bank
600 Atlantic Ave.
Boston, MA 02210

 
 
The Ride Assesments


Public Workshop on THE RIDE's In-Person Assessment Initiative

October 3, 2011 3:30-6:00 p.m.
Ten Park Plaza 
State Transportation Building, Boston

You may also email your comments to theride@mbta.com or write to THE RIDE, Ten Park Plaza, Room 5750, Boston, MA 02110.

Why is the MBTA proposing in-person assessments?

In-person assessments are used across the country and match people to the transportation mode that is most appropriate to their functional abilities; they are more accurate at determining if some customers can use buses/trains/trolleys for some or all of their trips.

The MBTA has made extensive investments in transit accessibility, and this process can introduce some customers to the flexibility that buses, trains, and trolleys provide.

If individuals have a disability that prevents using transit, they will continue to be RIDE eligible. The federal ADA intends for paratransit programs to be a 'safety net' for persons with disabilities who are unable to use public transit for some or all of their trips; they are not intended to be a service for all persons with disabilities. 
DAAHR Discussions

The discussions about managed care for people who are both MassHealth & Medicare subscribers continue within  Disability Advocates Advancing our Health Care Rights.

We are writing definitions for care that express our values rahther thna medical-0riented descriptions written by peopleinterested in containging costs. Here are few examples.

 

The medical homewill provide accessible, continuous, coordinated and comprehensive patient centered care managed by the care team which includes the member who also may determine the other members of the team and an independent community care coordinator of the members choosing.


The DAAHR Medical Necessity definition includes there is no other service or site of service, comparable in effect, available and suitable for the member that maintains the person in the most integrated and least restrictive setting and that is less costly.

  

DAAHR has reason to believe that the Feds are insisting on a mandatory enrollment so the program starts quickly. DAAHR, however, believes a slow and closely monitored ramp-up will be better in the long run. The DAAHR definiution of Enrollment is voluntary and that only members who affirmatively request enrollment shall be enrolled. We also say Members may dis-enroll from an integrated care entities or transfer to a different integrated care entities at any time.

  

We also think Primary care teamsshall consist of a member or his surrogate or guardian, a primary care physician, a community care coordinator selected by the member and other persons designated by the integrated care entity or requested by the member.

  

Another key element is Open Networks so members shall have the option of obtaining services other than primary care from any non-network provider,

  

There is a great deal of consenssu within the DAAHR members on these and other issues. One issue that remain is the nature of the organization that is available t0 the integrate care entity to coordinate home and community-based services. DAAHR members are working togther to resolve the issues which are both semantic and institutional (organizational, political) stemming from the varied backgrounds and experiences of the wide range of participants. There is be a more detailed discussion on this in a future issue.

 

Come to the meeting on Tuesday morning, 10 AM at 1 Ashburton Place 
 
Aspergers Syndome: Connections 2011

October 14, 2011

Conference Schedule 
 
 

Post Rating

 
 
P.O. Box 77 Boston, MA 02133